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Title: Identifiability and privacy in pluripotent stem cell research
Authors: Isasi, R
Andrews, PW
Baltz, JM
Bredenoord, AL
Burton, P
Chiu, I-M
Hull, SC
Jung, J-W
Kurtz, A
Lomax, G
Ludwig, T
McDonald, M
Morris, C
Ng, HH
Rooke, H
Sharma, A
Stacey, GN
Williams, C
Zeng, F
Knoppers, BM
Keywords: Data sharing;Pluripotent stem cell research;Policy framework
Issue Date: 2014
Publisher: Cell Press
Citation: Cell Stem Cell, 14 (4): 427 - 430, (3 April 2014)
Abstract: Data sharing is an essential element of research; however, recent scientific and social developments have challenged conventional methods for protecting privacy. Here we provide guidance for determining data sharing thresholds for human pluripotent stem cell research aimed at a wide range of stakeholders, including research consortia, biorepositories, policy-makers, and funders.
ISSN: 1934-5909
Appears in Collections:Dept of Social Sciences Media and Communications Research Papers

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