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Title: Improving the experience of dementia and enhancing active life - living well with dementia: study protocol for the IDEAL study
Authors: Clare, L
Nelis, SM
Quinn, C
Martyr, A
Henderson, C
Hindle, JV
Jones, IR
Jones, RW
Knapp, M
Kopelman, MD
Morris, RG
Pickett, JA
Rusted, JM
Savitch, NM
Thom, JM
Victor, CR
Keywords: Science & Technology;Life Sciences & Biomedicine;Health Care Sciences & Services;Health Policy & Services;Quality of life;Life satisfaction;Well-being;Person with dementia;Carer;Alzheimer's disease;Vascular dementia;Fronto-temporal dementia;Parkinson's disease dementia;Lewy body dementia;QUALITY-OF-LIFE;EARLY-STAGE DEMENTIA;ALZHEIMERS-DISEASE;COGNITIVE FUNCTION;OLDER-ADULTS;SOCIAL NETWORK;CARE HOMES;PEOPLE;HEALTH;PREDICTORS
Issue Date: 2014
Publisher: BioMed Central
Citation: Health and Quality of Life Outcomes, 2014, 12:164
Abstract: Background: Enabling people with dementia and carers to ‘live well’ with the condition is a key United Kingdom policy objective. The aim of this project is to identify what helps people to live well or makes it difficult to live well in the context of having dementia or caring for a person with dementia, and to understand what ‘living well’ means from the perspective of people with dementia and carers. Methods/Design: Over a two-year period, 1500 people with early-stage dementia throughout Great Britain will be recruited to the study, together with a carer wherever possible. All the participants will be visited at home initially and again 12 months and 24 months later. This will provide information about the way in which well-being, life satisfaction and quality of life are affected by social capitals, assets and resources, the challenges posed by dementia, and the ways in which people adjust to and cope with these challenges. A smaller group will be interviewed in more depth. Discussion: The findings will lead to recommendations about what can be done by individuals, communities, health and social care practitioners, care providers and policy-makers to improve the likelihood of living well with dementia.
Description: This article has been made available through the Brunel Open Access Publishing Fund.
ARTN 164
Appears in Collections:Publications
Brunel OA Publishing Fund

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